HOW COME THIS CCSVI MAKES SENSE?

As I sit here it is May 16, 2010 @ 6:14 pm EST

I have had this Blog page for a while but not enough time to enter my thoughts and whatever else. I have been reading hundreds of other peoples blogs and found them interesting, informative, so well written and absolutely fascinating. Good job everyone!

I do want to document my journey to get a better quality of life. I am not a politically correct type person and my writing skills are far from good quality as ALL those other bloggers have done. Oh well, I will do my best and this is basically for me to release and keep track for research, stats or whatever purpose that I can contribute.

Since November 21, 2009 I have been responding and commenting on various social networks and kept copies of most for my future entertainment. NOW 6 months later I cannot believe how may articles, web sites, comments and responses I have collected. I thought I may have a few and by today we would all be on our way to being treated and moving on with our lives. Shock to me on where we are today.

Anywhoooooo....I want to keep my thoughts and comments in one place so I decided to save some here as time went on and to see if my words were way wrong or too close. I wasn't sure if some of these entries would make sense but since this topic is becoming so redundant I am sure even I will understand all this nonsense! I have a lot on my plate right now. My son getting married on May 29 to his high school sweetheart (didn't realize this still went on!) She is a wonderful girl! I am also going out of my mind trying to organize in a messy fashion these days to seek treatment and there is so much involved I have yet to sort it in my head before I can even two finger type my thoughts, ideas, lists dates and so on. I have my wonderful husband to be with because I am on my laptop waaaay too much. I then have all my own CCSVI struggles to deal with whether it be that I have to make time for the bathroom thing or suppress a MS hug also deal with major discomfort in various parts of my body. It all limits me even more so I am not sure how often I will be able to keep up here but I hope to do my best!!

Here goes........................

November 22, 2009 at 12:31pm

What an amazing (too short) report on W5 last night. My inner voice is screaming with so much hope! But, this will be the most frustrating and maddening thing because we will be given the run around, delays, protocols, many excuses and double talk. Not to mention costs (read in Calif. $80,000.00 US) thousands if you want a fix now! Sorry that I am being negative about a very promising and a make sense procedure. I have had MS for too long. We have suffered, cried, and laughed but I know the future is already starting to go a bit sour. Just this morning alone as I expected there seem to be roadblocks already when you start surfing...If you do not have a doctor of any sort which is the predicament in right now. I am not able to get to a nureo on a regular basis, when I did there was nothing to offer me and was sent home. Why go through the expense and a lot of time for a driver and me. Now I want to see a nureo and I don’t have one I need referrals from whom? People without this awful disease or someone in the family have NO idea to comment or even have the right to obstruct. If I was without MS and had a blockage near my heart, would they not perform this same procedure right away? Of course, they would. So, what is the difference if I had a blockage in my neck? Would they have to study, research and protocol it? The fat cats are a shakin' now...............reminds me just a bit of Wall Street! I do still feel very uplifted though because I think this time around we will NOT take any more EXCUSES!